Qu'est-ce que le consentement en médecine ?

Decoding Consent: Clarity in Communication

08/07/2006

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In our daily lives, the concept of consent is often discussed, yet its multifaceted nature can sometimes be overlooked. It's far more than a simple "yes" or "no"; it encompasses understanding, willingness, and the freedom to choose without pressure. This article delves into the crucial aspects of consent, exploring its fundamental principles and examining its application across diverse contexts, from personal interactions to complex legal and medical scenarios. Gaining a clear grasp of consent is not just about avoiding missteps; it's about fostering respectful interactions, upholding personal autonomy, and ensuring that every individual's boundaries are recognised and honoured.

Comment faire comprendre le consentement ?
Il y a tout un tas d’outils d’information, de sensibilisation et de prévention qui permettent de comprendre et de faire comprendre ce qu’est le consentement. On en a repéré quelques-uns. D’abord, il y a une vidéo qui explique très bien la problématique du consentement de façon illustrée en prenant la métaphore du thé.
Table

Understanding Consent: The Foundational Principles

At its core, consent is about enthusiastic, voluntary agreement. It must be freely given, reversible, informed, enthusiastic, and specific. To truly grasp this concept, various educational tools and awareness campaigns have been developed to make it more accessible and understandable for everyone. These resources often break down complex ideas into simple, relatable analogies, helping to demystify what can sometimes feel like an abstract concept.

The Tea Metaphor: A Simple Analogy

One of the most effective and widely recognised illustrative methods for explaining consent is the "tea metaphor." Imagine you're offering someone a cup of tea. If they say "yes, please," that's clear consent. But what if they said "yes" earlier, and now they've fallen asleep? Offering them tea while they're unconscious is not consent. What if they said "yes," but they're visibly uncomfortable or being pressured? That's not genuine consent either. The metaphor brilliantly highlights several key principles:

  • Consent must be active: They need to explicitly say "yes" or clearly indicate their willingness.
  • Consent can be withdrawn: If they initially wanted tea but changed their mind, that's perfectly fine.
  • Consent cannot be assumed: Just because they had tea yesterday doesn't mean they want it today.
  • Consent cannot be given if someone is incapacitated: If they're unconscious, intoxicated, or otherwise unable to make a clear decision, they cannot consent.
  • Silence is not consent: A lack of "no" doesn't mean "yes."

This simple, humorous, yet profound analogy helps clarify that consent is an ongoing, active, and unambiguous agreement, not merely the absence of a refusal.

The Power of Clear Communication: Slogans that Resonate

Beyond metaphors, direct and impactful slogans play a vital role in raising awareness. Campaigns often use memorable phrases to reinforce the message of clear consent. One such powerful slogan is: "When it's yes, it's yes. When it's no, it's no. And when you don't know, keep your fingers to yourself." This straightforward statement leaves no room for ambiguity, emphasising that any uncertainty or lack of explicit agreement means that action should not proceed. These slogans are not just catchy; they are essential reminders that respect for personal boundaries is paramount in all interactions.

Consent in Archival and Genealogical Research: Navigating Historical Records

While the principles of consent are universal, their application can vary significantly depending on the context. One area where consent plays a crucial, albeit distinct, role is in the realm of historical and genealogical research, particularly concerning access to sensitive personal data contained within population registers and foreigner registers. In Belgium, for instance, significant changes were introduced in 2014 to the rules governing the consultation of these records.

The 2014 Amendments: Objectives and Scope

The primary objectives behind the 2014 amendments were twofold:

  1. To broaden possibilities for consultation: This aimed to facilitate genealogical, historical, and other scientific research, acknowledging the immense value of these records for academic and personal inquiry.
  2. To enable reproduction for durable preservation: Recognising the fragility of old paper records, the amendments allowed for the transfer of information to other media, ensuring the long-term conservation of vital historical data.

These modifications were formalised in the Royal Decree of 5 January 2014, which amended the Royal Decree of 16 July 1992, pertaining to the communication of information contained in population and foreigner registers. This decree came into effect on 27 January 2014, marking a pivotal moment for researchers and archivists alike. Importantly, this regulation applies to all population registers, regardless of whether they are held by municipalities or by the State Archives. Municipalities retain ownership of their registers, even if they have entrusted them to the State Archives for safekeeping.

Qui doit donner son consentement ?
L’AR prévoit une hiérarchie claire des personnes qui doivent donner leur consentement dans ce contexte : En premier lieu, il revient à la personne concernée de donner son consentement (si elle est encore en vie et saine d’esprit) ; dans le cas de mineurs, ce consentement doit être donné par les parents ou par le tuteur légal.

What Information Do Population Registers Hold?

Population registers have been mandatory for all communes since 1795, with foreigner registers being introduced in 1933. These registers are a primary source for identifying individuals and provide a rich tapestry of historical demographic data. Prior to 1920, records were often organised by neighbourhood, with each household having its own page. They typically contain detailed information about citizens, including:

  • Full name and given name(s)
  • Sex
  • Place and date of birth
  • Degree of kinship with the head of the household
  • Nationality
  • Profession
  • Civil status (e.g., single, married, widowed)
  • Date of registration and deregistration
  • Indication of previous and current domicile, including any secondary domicile
  • Date and place of death
  • Changes in civil status
  • Information regarding military service status

This wealth of information makes these registers invaluable for various research purposes, allowing for in-depth studies on social stratification, demographic and professional structures at both communal and individual household levels. Researchers can explore migratory flows, household sizes, active population rates, and the labour market for men and women, among other topics. Naturally, they are also exceptionally valuable for any genealogical research.

Modified Consultation Rules: The 120-Year Threshold

The 2014 Royal Decree introduced essential changes to how information from these registers can be obtained for genealogical, historical, or other scientific purposes, as well as for transferring information to other media for durable conservation. The rules for obtaining information are now split into two main regimes, based on a 120-year threshold since the registers were closed:

Registers Closed for Less Than 120 Years

For registers that have been closed for less than 120 years, direct consultation is generally not permitted. Instead, individuals can request extracts or certificates (of descent or domicile) for genealogical, historical, or scientific research. Obtaining these requires explicit consent, and the Royal Decree establishes a clear hierarchy of who must provide this consent:

  1. The person concerned: If they are still alive and of sound mind, their consent is paramount.
  2. Parents or legal guardian: For minors, consent must be given by their parents or legal guardian.
  3. Surviving spouse or legal cohabitant: If the person concerned is deceased or no longer of sound mind (e.g., due to dementia), their surviving spouse or legal cohabitant must provide consent.
  4. At least one child: If the surviving spouse or legal cohabitant is also unable to express their will, consent can be given by at least one of their children.
  5. Communal College: In the absence of first-degree descendants who can give consent, the College of Burgomasters and Aldermen (in the Brussels-Capital Region) or the Communal College (in Wallonia) may grant permission.

To access information from these registers, applicants must submit a motivated request to the commune, explicitly stating that the information will solely be used for genealogical, historical, or other scientific purposes and mentioning any potential publications where the data might be used. The College may also request additional information to substantiate the validity of the request. For consultation of these registers stored at the State Archives, written authorisation from the College must be presented to the reading room staff.

Registers Closed for More Than 120 Years

In contrast, registers that have been closed for more than 120 years can be freely consulted for genealogical, historical, or other scientific purposes. This applies whether the registers are in paper form or have been transferred to another information medium for durable preservation. This distinction acknowledges the passage of time and the reduced privacy concerns for very old records.

Reproduction for Durable Conservation

Municipalities now have the ability to transfer information from these registers to other media for durable conservation, such as digitisation. Reproductions of registers closed for more than 120 years can be made available to third parties at cost price. However, it is crucial to note that these reproductions cannot be disseminated broadly, ensuring a balance between accessibility and data protection.

Consent in Medical Practice: Beyond "Yes" or "No"

The concept of "free and informed consent" has long been enshrined in medical codes, declarations, and laws, yet its practical application remains a complex and evolving field. More recently, the notion of "assent" – a concept familiar to philosophers and legal scholars – has begun to timidly join the discourse. This emergence of assent raises an important question: can it revitalise an area that, originally forged to resist experimental transgressions, has sometimes become sterile through excessive procedures, a loss of meaning, and an inability to adapt to real-life situations?

The Need for Assent: Filling a Persistent Gap

It appears that the inclusion of "assent" is an attempt to address a persistent deficiency, a gap in medical ethics. When a person is not deemed capable of providing full "free and informed consent," what concept can be invoked that still grants them a recognised space for expression, bridging the all-or-nothing void? Incapacity often exists in degrees, varying moments, and diverse forms. Therefore, exploring this new resource and understanding the value of assent is crucial for enriching a language that yearns to truly live up to its purpose.

Etymological Roots and Nuances

Both "assent" and "consent" share a common origin: the Latin verb sentire, meaning "to feel." Originally, sentire encompassed two meanings: a more physical one (to experience, perceive, feel) and a more intellectual one (to think, express an opinion, judge – hence "sentence"). On one hand, it meant to feel with one's senses and sensibility, and on the other, to give one's sentiment or opinion. In the context of medical consent, we have largely lost the first, sensory part, reducing it primarily to a judgment: saying yes or no, accepting or not accepting. This loss has amputated the concept of its lived, personally and intimately elaborated dimension, leaving our "consent" without the subjective halo that is still present in assent.

Comment faire comprendre le consentement ?
Il y a tout un tas d’outils d’information, de sensibilisation et de prévention qui permettent de comprendre et de faire comprendre ce qu’est le consentement. On en a repéré quelques-uns. D’abord, il y a une vidéo qui explique très bien la problématique du consentement de façon illustrée en prenant la métaphore du thé.

The distinction is also visible in their prefixes. "Ad-" (which became "as-" in assent) signifies moving "towards," approaching. An assent, therefore, implies a progression, a journey, a rapprochement. In contrast, the prefix "cum-" in consent emphasises the acquired identity of two opinions (cum means "with"). It denotes the outcome or the agreement more than the process or the journey towards it.

Behavioural Distinctions: Formality vs. Subtle Signs

The differences between consent and assent extend to their practical manifestations. Assent often requires no ceremony. Consent, conversely, is typically accompanied by a degree of formality, legal officialisation, and sometimes even ritualisation. It demands specific formulas, proofs, and signatures, much like a marriage contract. Presuming consent is generally ill-advised.

Assent, on the other hand, does not necessarily use words, much less formulas, but it always uses signs. A nod of the head, a fleeting smile, a momentary welcoming gesture, can all signify assent. Sometimes, a brief moment of awareness, a glance, or a flash of vigilance is sufficient. Conversely, a tense face or averted gaze can convey refusal more effectively than a signature extracted from a "capable" patient. While giving consent can sometimes feel like a reluctant submission, assent is about quiet, trusting adherence. Both are rooted in the fundamental right to acquiesce, which authorises an action, and the right to refuse, which suspends any action outside of urgency and necessity.

The Importance of Recognising Assent

Simply invoking assent, however, is not enough. For it to be recognised on par with consent, healthcare providers and caregivers must learn to describe it effectively, which demands keen observation, careful deciphering of cues, and profound respect. Caregivers who work with patients with altered consciousness, or those suffering from Alzheimer's or other forms of dementia, understand this well, as do their close family members. In such cases, these individuals can officially combine assent and consent, consenting alongside their patients, who will not have completely lost their right to grant their assent, much like granting a grace.

Comparative Table: Consent vs. Assent in Medical Context

FeatureConsentAssent
DefinitionFormal, explicit agreement, typically free and informed.Willingness to participate or agree, often non-verbal or subtle, especially when full consent is not possible.
Origin (Latin sentire)Focus on intellectual judgment (yes/no).Retains sensory/experiential aspect; implies moving "towards" agreement.
FormalityRequires specific formulas, proofs, signatures; often public/legal.Often informal; may not use words.
ExpressionVerbal or written "yes" after full understanding.Non-verbal cues: nod, smile, welcoming gesture, glance, moment of awareness.
Capacity RequirementFull mental capacity to understand and decide.Applicable when full consent capacity is limited (e.g., altered consciousness, dementia, minors).
PresumptionShould never be presumed.Observed and interpreted, not explicitly demanded.
RoleAuthorises actions, legally binding.Acknowledges patient's remaining autonomy and preference, guides care.

Frequently Asked Questions About Consent

Q: What is the most fundamental aspect of consent?
A: The most fundamental aspect is that consent must be voluntary, enthusiastic, and clearly communicated. It cannot be assumed, coerced, or given when someone is incapacitated. As the tea metaphor illustrates, it's about a clear and willing "yes."
Q: Why are there different rules for accessing old population registers based on age?
A: The distinction (less than 120 years vs. more than 120 years) is primarily for privacy and data protection. For more recent records (less than 120 years), there's a higher likelihood that the individuals or their direct descendants are still alive, necessitating strict consent protocols. For older records, privacy concerns diminish, allowing for freer access for historical and genealogical research.
Q: What is the key difference between "consent" and "assent" in a medical context?
A: While both involve agreement, "consent" is a formal, legally binding agreement requiring full understanding and capacity. "Assent" is a more subtle expression of willingness or agreement, often conveyed non-verbally, used when a person's capacity to give full informed consent is limited. Assent acknowledges and respects a person's remaining ability to express their preferences.
Q: Can someone who isn't fully capable of giving consent still have their wishes respected?
A: Absolutely. This is precisely where the concept of "assent" becomes crucial. Even if an individual cannot provide full informed consent due to altered consciousness, cognitive impairment, or age, their subtle cues, expressions, and behaviours indicating agreement or refusal should be observed, respected, and incorporated into decision-making processes by caregivers and family members.
Q: Who is responsible for giving consent for minors in genealogical research?
A: According to the Belgian Royal Decree mentioned, for minors whose records are being sought, consent must be given by their parents or legal guardian. This ensures that the privacy and rights of young individuals are protected in the context of historical data access.

Understanding consent in all its forms is a cornerstone of respectful human interaction and ethical practice. Whether it's a simple everyday decision or a complex legal or medical scenario, the principles of clear communication, voluntary agreement, and respect for individual autonomy remain paramount. By educating ourselves and others on these nuances, we contribute to a society where boundaries are honoured, and every "yes" is truly meaningful.

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